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Rangefinder
Magazine
October 2003
Butterflies in Front of Your Lens or in
Your Tummy? by Karen Dórame
Photographing Kids With Special Needs
Ever worked
with butterflies? You don’t have to be a nature photographer
to encounter the fluttering, elusive aspects of a flighty subject
in front of your lens. As with a butterfly, simply asking a child
with autism to sit on a stool and smile for you is pretty much going
to be out of the question.
What’s a professional photographer
to do? Some do the best they know how with special children, others
do somewhat less than
best while
still others attempt to avoid the assignment altogether. Many photographers
are just plain scared that they will not be able to produce the beautiful
work to which their clients are accustomed.
While most photographers are
sympathetic to this concern, generally speaking, within the industry,
much can be done to improve its image with respect
to photographing children with special needs. Just ask the parents of
those children.
Special Kids Photography of America is a nonprofit organization
dedicated to improving photographic services to families of special children.
They
recently conducted a survey to gather statistics surrounding those services.
Although the survey was limited and only provided a brief indication
of need, nearly 75 percent of the parents of disabled children reported
that the photographer they used could benefit from specialized training.
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| Photo by Laura Popiel of sisters sharing a moment
in the park |
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One
frustrated parent said, “Any time we would take [our little
7-year old disabled boy] into a portrait studio, the employees would
hover together trying to decide who had drawn the short straw.” She
continued to explain that most of the time the photographers were unaware
of the “gross mistreatment” her son was receiving.
This isn’t
an isolated case. Special Kids Photography of America (SKPA) was originally
created out of a mother’s frustration when
she visited a portrait studio for the first time with her one year-old
disabled child. The photographer tried his best to turn her away. Although
pictures were taken and proofs produced, they clearly lacked special
consideration that could have been provided to produce more than satisfactory
results.
Since SKPA’s creation, many parents have come
forward to express the need for photographers to be educated in working,
not only
with disabled
kids, but also with those who are seriously ill. More than one parent
reports that when they went to obtain a professional photograph of their
terminally ill child, they were turned away, with the added suggestion
that they could return when the child’s hair grew back or when
the tubes were no longer necessary. Unfortunately, these stories did
not have happy endings.
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| Photo by Sally Harding. Katie (see article) has slight
indentation on her cheek left after an oxygen tube had been temporarily
removed for the photo. |
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Since national demographics indicate that nearly
one in five persons has some type of disability, that should compute
to at least 15 percent
of a photographer’s clientele being blind, deaf, autistic or with
some other kind of disability. Some conditions are very obvious, others
hardly noticeable. Nevertheless, the photographer should be comfortable
in asking the parent if there is anything about the child that he/she
should know in order to make the best decisions concerning the photo.
For
instance, some children may be sensitive to certain types of lighting.
Flickering studio lights or outdoor sun/shade patterns could trigger
a seizure. Several types of disorders such as autism or Down syndrome
are included in this category. In such cases, the best solution could
be natural lighting.
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| Photo by Laura Popiel. This child (Ashtyn) has Aicardi
Syndrome, a brain condition found only in girls. |
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This is where the pre-session interview with the
parent plays an important role. Gaining understanding about what the
child can or can’t do
will help the photographer plan whether to make a studio or environmental
shot or whether to use artificial or natural lighting. Does the parent
want the wheelchair to show? Can the child sit unassisted? These are
all questions that need to be addressed. Find a downloadable copy of
the interview form on the specialkid
sphotography.com. website.
After learning more about the child’s
possible behavior or physical limitations, the reader may determine that
the photographer must take
more the role of a professional care provider such as doctor or therapist
than a photographer, even though the resulting “service” will
result in positive images instead of x-rays.
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| Lindsay, who is blind, is not directly looking toward
the lens, always a good alternative for a child with an eye problem.
Photo by Laura Popiel. |
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| Photo by Sally Harding. Hard to snap Scout lies
upside-down in her own home with available light bathing her face
from a nearby window. |
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Special Kids affiliated photographers
have devised unique ways to photograph their clientele—some simple
solutions, others very innovative. Jennifer Collins (Eatonton, Georgia),
uses baskets or suitcases to support
infants and young children who have spina bifida, a condition affecting
the spine. Even the floor makes a great back support!
Laura Popiel (Houston,
Texas) has devised some very ingenious methods to achieve success in
more than a few extremely difficult shoots. She
found a Velcro brace in the surgical device section of a drug store.
Laura determined this to be an ideal way to keep her little subject from
bending over or scooting off a chair while attending her very own “dolly
and me” tea party. She also finds clever lighted devices in the
toy departments of large discount stores to use as attention-getters
for certain children who could “lose it” with noisy objects.
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| Hanna J Party, photo by Laura Popiel. |
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Children
who are blind or have other eye problems are generally not good candidates
for direct eye contact posing. When learning of your sitting
with with a child who is visually impaired, find out what the child likes
to do. Looking down toward a favorite toy (have the mother bring it along)
is a good option. The child shown opposite has additional issues that
made it difficult to physically “capture” her and keep her
located in one spot for any length of time. Therapists helped place her
in the crook of a tree where they securely held onto her from the back.
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| Photo by Laura Popiel. Popiel snaps late afternoon
photo of her own little Nick in field of blue flowers. |
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Special
Kids Photography of America offers training that will provide “accreditation” to
photographers after successful completion of testing and approval of
submitted photos. Contact information for accredited photographers is
then listed on the SKPA website and is provided when requested. The SKPA
logo can then be used in their promotional material such as business
cards and website. The next SKPA Accreditation Training will be held
near Phoenix, Arizona on October 13. Check out the web site: www.specialkidsphotography.com.
for specific details.
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| Photo by Jennifer Collins. Bobby has spina bifida,
a spinal condition which requires him to have firm back support. |
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With SKPA training, photographers become a lot more
confident with special children and the parents a lot happier with the
results. Unfortunately,
it tends to be human nature for people to turn away when encountering
a disabled child on the sidewalk or in the mall. Imagine the pride and
exhilarating joy a parent feels when they see others pouring out praises
over a beautiful portrait of their child—not a stoic studio pose—but
a “living” picture of the child enjoying just one moment
in life.
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| Photo by Karen Dórame. Photo of blind child
looking away from the lens is a good choice. Other attending conditions
prevent her from staying in one place for very long. Attendants helped
her stay in position in the “Y” of a schoolyard tree. |
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Karen Dórame, graduated in communications from
Brigham Young University and worked in public relations prior to leaving
the
commercial sector
to write Photographing Children with Special Needs and found Special
Kids Photography of America, a nonprofit organization that “increases
the face value” of children with special needs. Karen can be reached
at (623) 572-0046 or by email at: kdorame@specialkidsphotography.com/.
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